WEBINAR: Rare Disease Day | The Heart of Caregiving
Designed to be a platform of inspiration, compelling stories from caregivers, patients, and advocates will be shared to provide valuable insights into the multifaceted aspects of caregiving. Practical self-care practices will stress the importance of maintaining the well-being of those who provide care, with an emphasis on how caregivers can connect and support each other in their roles.
The event will promote the empowerment of persons with disabilities, promote inclusion and equity, and move towards a sustainable and resilient society, the event will also address ways to propel access and empowerment for people of all abilities.
#RareDiseaseDay2024 #HeartOfCare #TogetherWeAreStronger
Moderators
Raymond A. Huml
VP, Medical and Scientific Strategy & Head of the Rare Disease Consortium, Syneos Health
Keri McDonough
Global Head, Patient-Powered Medicine & VP, Medical & Scientific Strategy
Panelists
Meredith L. Huml
Chapter Director, FSHD North Carolina Chapter
Cristol Barrett O'Loughlin
Founder & CEO, Raregivers™ by ANGEL AID
Monica Summers
Sickle Cell Program Director, Piedmont Health Services and Sickle Cell Agency
Tiffany Cook
Director, Patient-Powered Medicine, Syneos Health
Special Guest
John Crowley
Executive Chairman, Amicus Therapeutics
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