Meeting Highlights and Summary

In the United States, a rare disease is defined as a condition that affects fewer than 200,000 people, so it may be counterintuitive to realize that rare diseases cumulatively are not in fact rare. An astounding 7,000 rare diseases are known, and 30 more are being described each year. Eighty percent of these are genetic disorders, affecting 3 to 4 percent of all births. Although the number of individuals suffering from a single rare disease is small, the total number of individuals suffering from a rare disease is significant.


On February 28, 2019, Nick Kenny, Chief Scientific Officer at Syneos Health, hosted the first Rare Disease Day Symposium for Syneos Health, an event that brought together national and local experts for thought provoking presentations and candid discussion about the present and future state of clinical research in rare disease and the latest initiatives driving change.


Click here to read the meeting highlights and summary.

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