October 29, 2020

 

Father-daughter duo Ray and Meredith Huml team up with friends at the FSHD* Society to provide a “friends and family” view into the ways patients and advocates join hands with pharma to develop solutions.

Speakers:

  • Ray Huml, VP, Medical & Scientific Affairs and Rare Disease Consortium Lead, Syneos Health
  • Meredith Huml, Communications Assistant, Disability Rights NC, FSHD Patient
  • Mark Stone, CEO, FSHD Society
  • Jashmid Arjomand, PhD, Chief Science Officer, FSHD Society

*Facioscapulohumeral muscular dystrophy