On-demand webinar hosted by Syneos Health in celebration of Rare Disease Day 2024, exploring insights and honoring caregivers and patients who navigate rare disease.
Rare diseases affect millions around the globe, often presenting unique challenges that demand extraordinary care, understanding and resilience. It is in the face of these challenges that caregivers emerge as beacons of hope, demonstrating unparalleled compassion and commitment to the well-being of their loved ones.
On Rare Disease Day 2024, Syneos Health honored rare disease caregivers by hosting this special webinar, The Heart of Caregiving, featuring caregivers, patients and advocates sharing compelling stories, and highlighting the immense strength and dedication required to support individuals with rare diseases.
Watch the webinar recording below.
Speakers:
Raymond A. Huml, VP, Medical & Scientific Strategy & Head of the Rare Disease Consortium, Syneos Health
Keri McDonough , VP, Head of the Patient Voice Consortium, Syneos Health
Tiffany Cook , Director, InCommon, Syneos Health
Meredith L. Huml, Chapter Director, FSHD North Carolina Chapter
Cristol Barrett O'Loughlin, CEO, Angel Aid Cares
Monica Sommers, Sickle Cell Caregiver
With a special message from John F. Crowley, Executive Chairman, Amicus Therapeutics
